He was all set to have neck and back surgery just the other day, but Cradle of Filth guitarist James McIlroy refused the procedure.
“Last night I went into hospital, got admitted, got given a bed and had a few tests done, and one last MRI scan. Everything was set, and this morning, after having not slept all night (hospitals aren’t exactly fun to sleep in), I was going through the operation prep this morning, had my ECG, had psyched myself up and was all ready to go with 30 minutes to an hour until they were going to take me in when suddenly I found out that the disc-replacement surgery to them meant inserting a small cage in place of the damaged disc and then letting the bones fuse together. Now neck fusion is not what I had believed was going to happen for the past 9 months since the diagnosis, and from everything I have read about, it reduces neck mobility and ends up with the other discs getting worn resulting in needing more fusions.
“After speaking to the surgeon and head consultant for the first time (instead of a different junior doctor every time), he said he would not perform the disc replacement surgery as he did not think it was proven enough, and would not do it as he had been performing fusions for the past 20 years, which is at odds with the impression I had got that he was one of the people championing prosthetic disc replacement surgery.
“Today is the first time in the whole process I have heard the term fusion. In every single consultation I have had since being diagnosed and being told I needed surgery I have mentioned the replacement disc, and no one has corrected me, or even told me that that was not the case.
“As I don’t want decreased mobility and know that they do do the actual artificial disc replacement, I refused the surgery. As such, I could not sign the consent form to undego a surgery that I would have not said yes to due to the possible impact on degenerating the rest of the discs in my neck.
“Instead of waking up and being hopeful that for the first time in almost a decade I won’t have to constantly worry about being crippled by periods of pain, and knowing that the disc which is in such bad condition and is pressing on my nerve canal in my neck is finally fixed, I am now back at square one having to go through the whole process again, along with all the waiting.
“I have been blown away by the support from everywhere, it’s been mind blowing and humbling to know that there are so many people out there who have wished me well.
“I am not going to let this be the end, as I am going to keep fighting to get the surgery I need and I feel is best for me. However, at the moment I feel robbed of a better life and resigned to still having to deal with the pain I have been dealing with on a daily basis, and that it will be with me for longer.
“Thanks to everyone for their support and wishes, this isn’t over yet, not if I have anything to do with it!”
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